The NIH Genomic Data Sharing (GDS) Policy

Abstract

If your human subjects research includes any genetic research and/or specimen banking, this Learning Shot explains why you may wish to include the genomic data sharing language in the consent form from the beginning of your research. This helps ensure that you will avoid the possibility of re-consenting subjects in the future if your future research may be subject to the NIH Genomic Data Sharing Policy. This video also provides a brief overview of the NIH Genomic Data Sharing (GDS) Policy and will help you identify the resources about the GDS Policy in the iTHRIV Portal.